HOME HELP FEEDBACK SUBSCRIPTIONS ARCHIVE SEARCH TABLE OF CONTENTS		QUICK SEARCH:   [advanced] Author: Keyword(s): Year:  Vol:  Page:

This Article Full Text Full Text (PDF) Purchase Article View Shopping Cart Alert me when this article is cited Alert me if a correction is posted Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Download to citation manager Request Permissions Citing Articles Citing Articles via HighWire Citing Articles via Google Scholar Google Scholar Articles by Laffel, L. M.B. Articles by Anderson, B. J. Search for Related Content PubMed PubMed Citation Articles by Laffel, L. M.B. Articles by Anderson, B. J. Social Bookmarking                What's this?

General Quality of Life in Youth With Type 1 Diabetes

Relationship to patient management and diabetes-specific family conflict

From the Pediatric and Adolescent Unit, Genetics and Epidemiology Section, Behavioral Research and Mental Health Section, Joslin Diabetes Center, Harvard Medical School, Boston, Massachusetts

Address correspondence and reprint requests to Lori Laffel, MD, MPH, Pediatric & Adolescent Unit, Joslin Diabetes Center, One Joslin Place, Boston, MA 02215. E-mail: lori.laffel{at}joslin.harvard.edu

OBJECTIVE—To evaluate self-report and parent proxy report of child/teen general quality of life in youth with type 1 diabetes, compare their responses with those of a general pediatric population, and identify relationships between diabetes management, diabetes-related family behavior, and diabetes-specific family conflict with quality of life in youth with type 1 diabetes.

RESEARCH DESIGN AND METHODS—Study participants included 100 children, 8–17 years of age (12.1 ± 2.3), with type 1 diabetes for 0.5–6 years (2.7 ± 1.6). Each child and a parent completed the Pediatric Quality of Life Inventory (PedsQL), completed the Diabetes Family Conflict Scale, and provided data on parent involvement in diabetes management. An independent measure of adherence to treatment assessed by the patient’s clinician and a measure of glycemic control (HbA_1c) were also collected.

RESULTS—PedsQL responses from youth with type 1 diabetes were stable over 1 year and similar to norms from a healthy standardization sample for all three scales of the PedsQL: total, physical, and psychosocial quality of life. After controlling for age, duration of diabetes, sex, HbA_1c, and family involvement, child report of diabetes-specific family conflict (P < 0.01) was the only significant predictor of child report of quality of life (model R² = 0.21, P < 0.02).

CONCLUSIONS—Youth with type 1 diabetes report remarkably similar quality of life to a nondiabetic youth population. Greater endorsement of diabetes-specific family conflict predicted diminished quality of life for the child. As treatment programs focus on intensifying glycemic control in youth with type 1 diabetes, interventions should include efforts to reduce diabetes-specific family conflict in order to preserve the child’s overall quality of life.

Abbreviations: DQOLY, Diabetes Quality of Life for Youth • PedsQL, Pediatric Quality of Life Inventory

CiteULike    Del.icio.us    Digg    Reddit    Technorati    What's this?

This article has been cited by other articles:

				M. J. Naughton, A. M. Ruggiero, J. M. Lawrence, G. Imperatore, G. J. Klingensmith, B. Waitzfelder, R. E. McKeown, D. A. Standiford, A. D. Liese, B. Loots, et al. Health-Related Quality of Life of Children and Adolescents With Type 1 or Type 2 Diabetes Mellitus: SEARCH for Diabetes in Youth Study Arch Pediatr Adolesc Med, July 1, 2008; 162(7): 649 - 657. [Abstract] [Full Text] [PDF]

				M. E. Hilliard, M. Goeke-Morey, F. R. Cogen, C. Henderson, and R. Streisand Predictors of Diabetes-related Quality of Life after Transitioning to the Insulin Pump J. Pediatr. Psychol., June 27, 2008; (2008) jsn062v2. [Abstract] [Full Text] [PDF]

				V. S. Helgeson, K. A. Reynolds, L. Siminerio, O. Escobar, and D. Becker Parent and Adolescent Distribution of Responsibility for Diabetes Self-care: Links to Health Outcomes J. Pediatr. Psychol., June 1, 2008; 33(5): 497 - 508. [Abstract] [Full Text] [PDF]

				J. Weissberg-Benchell, S. S. Goodman, J. Antisdel Lomaglio, and K. Zebracki The Use of Continuous Subcutaneous Insulin Infusion (CSII): Parental and Professional Perceptions of Self-care Mastery and Autonomy in Children and Adolescents J. Pediatr. Psychol., November 1, 2007; 32(10): 1196 - 1202. [Abstract] [Full Text] [PDF]

				F. J. Cameron, E. A. Northam, G. R. Ambler, and D. Daneman Routine Psychological Screening in Youth With Type 1 Diabetes and Their Parents: A notion whose time has come? Diabetes Care, October 1, 2007; 30(10): 2716 - 2724. [Full Text] [PDF]

				H A Hutchings, P Upton, W-Y Cheung, A Maddocks, C Eiser, J G Williams, I T Russell, S Jackson, and M E M Jenney Adaptation of the Manchester-Minneapolis Quality of Life instrument for use in the UK population Arch. Dis. Child., October 1, 2007; 92(10): 855 - 860. [Abstract] [Full Text] [PDF]

				P. C. Damiano, M. C. Tyler, P. A. Romitti, E. T. Momany, M. P. Jones, J. W. Canady, M. P. Karnell, and J. C. Murray Health-Related Quality of Life Among Preadolescent Children With Oral Clefts: The Mother's Perspective Pediatrics, August 1, 2007; 120(2): e283 - e290. [Abstract] [Full Text] [PDF]

				M de Wit, H A Delemarre-van de Waal, F Pouwer, R J B J Gemke, and F J Snoek Monitoring health related quality of life in adolescents with diabetes: a review of measures Arch. Dis. Child., May 1, 2007; 92(5): 434 - 439. [Abstract] [Full Text] [PDF]

				D. Sherifali and J. Pinelli Parent as Proxy Reporting: Implications and Recommendations for Quality of Life Research Journal of Family Nursing, February 1, 2007; 13(1): 83 - 98. [Abstract] [PDF]

				J. M. Valenzuela, A. M. Patino, J. McCullough, C. Ring, J. Sanchez, M. Eidson, R. Nemery, and A. M. Delamater Insulin Pump Therapy and Health-Related Quality of Life in Children and Adolescents with Type 1 Diabetes J. Pediatr. Psychol., July 1, 2006; 31(6): 650 - 660. [Abstract] [Full Text] [PDF]

				M. H. Zeller, H. R. Roehrig, A. C. Modi, S. R. Daniels, and T. H. Inge Health-Related Quality of Life and Depressive Symptoms in Adolescents With Extreme Obesity Presenting for Bariatric Surgery Pediatrics, April 1, 2006; 117(4): 1155 - 1161. [Abstract] [Full Text] [PDF]

				M. L. McCarthy, E. J. MacKenzie, D. R. Durbin, M. E. Aitken, K. M. Jaffe, C. N. Paidas, B. S. Slomine, A. M. Dorsch, J. R. Christensen, R. Ding, et al. Health-Related Quality of Life During the First Year After Traumatic Brain Injury Arch Pediatr Adolesc Med, March 1, 2006; 160(3): 252 - 260. [Abstract] [Full Text] [PDF]

				D. J. Wiebe, C. A. Berg, C. Korbel, D. L. Palmer, R. M. Beveridge, R. Upchurch, R. Lindsay, M. T. Swinyard, and D. L. Donaldson Children's Appraisals of Maternal Involvement in Coping With Diabetes: Enhancing Our Understanding of Adherence, Metabolic Control, and Quality of Life Across Adolescence J. Pediatr. Psychol., March 1, 2005; 30(2): 167 - 178. [Abstract] [Full Text] [PDF]