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The ePedsQL^TM in Type 1 and Type 2 Diabetes

Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory^TM Internet administration

¹ Department of Pediatrics, College of Medicine, Texas A&M University, College Station, Texas
² Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, Texas
³ Department of Psychology, College of Liberal Arts, Texas A&M University, College Station, Texas
⁴ The Children's Hospital at Scott and White, Department of Pediatrics, College of Medicine, Texas A&M University Health Science Center, Temple, Texas
⁵ Division of Endocrinology, The Children's Hospital at Scott and White, Department of Pediatrics, College of Medicine, Texas A&M University Health Science Center, Temple, Texas
⁶ Division of Endocrinology, The Children's Hospital at Scott and White, Department of Pediatrics, College of Medicine, Texas A&M University Health Science Center, Temple, Texas

Address correspondence and reprint requests to James W. Varni, PhD, Professor of Architecture and Medicine, College of Architecture, Texas A&M University, 3137 Texas A&M University, College Station, TX 77843-3137. E-mail: jvarni{at}archmail.tamu.edu

OBJECTIVE—The Pediatric Quality of Life Inventory (PedsQL) is a modular instrument designed to measure health-related quality of life (HRQOL) in children and adolescents aged 2–18 years. The PedsQL 4.0 Generic Core Scales are child self-report and parent proxy–report scales developed as the generic core measure to be integrated with the PedsQL disease-specific modules. The electronic version of the PedsQL 4.0 (ePedsQL) was designed for Internet administration.

RESEARCH DESIGN AND METHODS—Utilizing a randomized crossover design, the PedsQL scales were administered to 92 pediatric patients with type 1 or type 2 diabetes and 93 parents in electronic and paper formats.

RESULTS—Missing values (0.76% child report, 0.37% parent report), internal consistency reliability (total scale score = 0.90 child report, 0.92 parent report), and mean scores (total scale score M = 78.41 child report, 76.19 parent report) were equivalent between the electronic and paper-and-pencil modes of administration. The ePedsQL distinguished between healthy children and children with diabetes.

CONCLUSIONS—The ePedsQL Internet mode of administration demonstrated equivalent measurement properties to the well-established PedsQL paper-and-pencil mode of administration.

Abbreviations: ePedsQL, electronic Pediatric Quality of Life Inventory • HRQOL, health-related quality of life • ICC, intraclass correlation coefficient • PedsQL, Pediatric Quality of Life Inventory

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