OBJECTIVE To assess the appropriateness of national surveillance of IDDM.
RESEARCH DESIGN AND METHODS We reviewed the structure and function of national disease surveillance, the diverse goals of IDDM surveillance, and prior experience with IDDM as a reportable disease.
RESULTS Surveillance is the systematic and ongoing collection, analysis, interpretation,and dissemination of data linked to public health action. The potential goals of surveillance of IDDM are to understand the etiology and trends in incidence of IDDM, to measure the burden of IDDM and its complications, and to assess mortality. Problems associated with surveillance of IDDM include underreporting, delayed reporting, and lack of funding.
CONCLUSIONS To make IDDM a nationally reportable disease is neither warranted nor feasible at this time. Although surveillance is needed to understand diabetes better and for diabetes control, proposed initiatives, such as major expansions of IDDM reporting, should be developed to address specific questions, problems, and needs— stillrecognizing real-world issues of competing priorities and limited resources.
- Received June 5, 1992.
- Revision received January 21, 1993.
- Accepted January 21, 1993.
- Copyright © 1993 by the American Diabetes Association