The ePedsQL™ in Type 1 and Type 2 Diabetes
Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory™ Internet administration
- James W. Varni, PHD12,
- Christine A. Limbers, MS3,
- Tasha M. Burwinkle, PHD4,
- William P. Bryant, MD5 and
- Don P. Wilson, MD6
- 1Department of Pediatrics, College of Medicine, Texas A&M University, College Station, Texas
- 2Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, Texas
- 3Department of Psychology, College of Liberal Arts, Texas A&M University, College Station, Texas
- 4The Children's Hospital at Scott and White, Department of Pediatrics, College of Medicine, Texas A&M University Health Science Center, Temple, Texas
- 5Division of Endocrinology, The Children's Hospital at Scott and White, Department of Pediatrics, College of Medicine, Texas A&M University Health Science Center, Temple, Texas
- 6Division of Endocrinology, The Children's Hospital at Scott and White, Department of Pediatrics, College of Medicine, Texas A&M University Health Science Center, Temple, Texas
- Address correspondence and reprint requests to James W. Varni, PhD, Professor of Architecture and Medicine, College of Architecture, Texas A&M University, 3137 Texas A&M University, College Station, TX 77843-3137. E-mail: jvarni{at}archmail.tamu.edu
Abstract
OBJECTIVE—The Pediatric Quality of Life Inventory (PedsQL) is a modular instrument designed to measure health-related quality of life (HRQOL) in children and adolescents aged 2–18 years. The PedsQL 4.0 Generic Core Scales are child self-report and parent proxy–report scales developed as the generic core measure to be integrated with the PedsQL disease-specific modules. The electronic version of the PedsQL 4.0 (ePedsQL) was designed for Internet administration.
RESEARCH DESIGN AND METHODS—Utilizing a randomized crossover design, the PedsQL scales were administered to 92 pediatric patients with type 1 or type 2 diabetes and 93 parents in electronic and paper formats.
RESULTS—Missing values (0.76% child report, 0.37% parent report), internal consistency reliability (total scale score α = 0.90 child report, 0.92 parent report), and mean scores (total scale score M = 78.41 child report, 76.19 parent report) were equivalent between the electronic and paper-and-pencil modes of administration. The ePedsQL distinguished between healthy children and children with diabetes.
CONCLUSIONS—The ePedsQL Internet mode of administration demonstrated equivalent measurement properties to the well-established PedsQL paper-and-pencil mode of administration.
- ePedsQL, electronic Pediatric Quality of Life Inventory
- HRQOL, health-related quality of life
- ICC, intraclass correlation coefficient
- PedsQL, Pediatric Quality of Life Inventory
Footnotes
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Published ahead of print at http://care.diabetesjournals.org on 9 January 2008. DOI: 10.2337/dc07-2021.
J.W.V. holds the copyright and the trademark for the PedsQL and receives financial compensation from the Mapi Research Trust, which is a nonprofit research institute that charges distribution fees to for-profit companies that use the PedsQL Inventory.
The costs of publication of this article were defrayed in part by the payment of page charges. This article must therefore be hereby marked “advertisement” in accordance with 18 U.S.C Section 1734 solely to indicate this fact.
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- Accepted January 3, 2008.
- Received October 18, 2007.
- DIABETES CARE
