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e-Letters: Comments and Responses

Comment on Riddle et al. Diabetes Care Editors’ Expert Forum 2018: Managing Big Data for Diabetes Research and Care. Diabetes Care 2019;42:1136–1146

  1. Laura Lee Hall1⇑,
  2. Gary A. Puckrein2 and
  3. Jaime A. Davidson3,4
  1. 1Sustainable Healthy Communities, Washington, DC
  2. 2National Minority Quality Forum, Washington, DC
  3. 3Touchstone Diabetes Center, University of Texas Southwestern Medical Center, Dallas, TX
  4. 4Diabetes Working Group and Equity Task Force, Sustainable Healthy Communities, Washington, DC
  1. Corresponding author: Laura Lee Hall, lhall{at}shcllc.info
Diabetes Care 2019 Nov; 42(11): e183-e183. https://doi.org/10.2337/dc19-1262
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We commend Riddle et al. (1) for reviewing the potential and challenges of big data in modern health care, given its transformational power in predicting and improving care and outcomes. It is important, however, to recognize additional and evolving data sources as well as the equitable application of big data analytics.

The meeting report focuses on three major sources of big data: the electronic medical record, national surveys and registries, and clinical trial databases. There are additional data sources that can provide powerful insights into public health, including administrative claims data from payors, wearable devices and glucose monitors tracking and communicating physiologic variables, and precision medicine data (2).

A significant challenge posed by big data analytics is its translation into actionable information, as the article acknowledges. Data visualization is one important strategy for empowering action. For more than 15 years, the National Minority Quality Forum has applied geographic information system (GIS) mapping technology to diabetes data from surveys and claims, identifying regional variation in prevalence, treatment, costs, and outcomes (3,4). The presentation of data in maps and charts by geography has promoted awareness, advocacy, clinical trial recruitment, and policy development.

A significant concern that we have is equitable access. It is critical that big data include information from minority populations and that the analytics are accessible to minority researchers and patient representatives. The National Institutes of Health’s Precision Medicine Initiative is one program taking steps to include diverse populations (5). Our updated GIS mapping platform technology—G.A.R.I. (Geo-mapping Advocacy Research Informatics)—is integrating more data and affording the end user greater control over the data analysis through the use of a relational database and, ultimately, machine learning. We are taking the deliberate steps of making this resource available to patients and their advocacy organizations, empowering their big data–informed voice.

Big data analytics has the power to transform the health care system. We need to make sure that this transformation promotes health equity and patient-centered results.

Article Information

Duality of Interest. No potential conflicts of interest relevant to this article were reported.

  • © 2019 by the American Diabetes Association.
http://www.diabetesjournals.org/content/license

Readers may use this article as long as the work is properly cited, the use is educational and not for profit, and the work is not altered. More information is available at http://www.diabetesjournals.org/content/license.

References

  1. ↵
    1. Riddle MC,
    2. Blonde L,
    3. Gerstein HC, et al
    . Diabetes Care Editors’ Expert Forum 2018: managing big data for diabetes research and care. Diabetes Care 2019;42:1136–1146
    OpenUrlAbstract/FREE Full Text
  2. ↵
    1. Mooney SJ,
    2. Pejaver V
    . Big data in public health: terminology, machine learning, and privacy. Annu Rev Public Health 2018;39:95–112
    OpenUrl
  3. ↵
    1. Caballero AE,
    2. Davidson J,
    3. Elmi A, et al
    . Previously unrecognized trends in diabetes consumption clusters in Medicare. Am J Manag Care 2013;19:541–548
    OpenUrl
  4. ↵
    1. Puckrein GA,
    2. Egan BM,
    3. Howard G
    . Social and medical determinants of cardiometabolic health: the big picture. Ethn Dis 2015;25:521–524
    OpenUrl
  5. ↵
    National Institutes of Health. All of Us Research Program (Internet). Available from https://allofus.nih.gov/. Accessed 5 September 2019
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Diabetes Care: 42 (11)

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Comment on Riddle et al. Diabetes Care Editors’ Expert Forum 2018: Managing Big Data for Diabetes Research and Care. Diabetes Care 2019;42:1136–1146
Laura Lee Hall, Gary A. Puckrein, Jaime A. Davidson
Diabetes Care Nov 2019, 42 (11) e183; DOI: 10.2337/dc19-1262

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Comment on Riddle et al. Diabetes Care Editors’ Expert Forum 2018: Managing Big Data for Diabetes Research and Care. Diabetes Care 2019;42:1136–1146
Laura Lee Hall, Gary A. Puckrein, Jaime A. Davidson
Diabetes Care Nov 2019, 42 (11) e183; DOI: 10.2337/dc19-1262
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